Showing posts with label Perinatal Bereavement. Show all posts
Showing posts with label Perinatal Bereavement. Show all posts

Wednesday, July 11, 2018

Hope's Labyrinth

I invite you to pause for a moment and take some time for some contemplative play.

Start by letting this image fill your mind as you focus on your breath and letting yourself slow down into this time and this space.  Letting your breath and this picture be all that you attend to right now.





Hope's Labyrinth. Our families healing ritual as we built it seven years ago. Hope's marker of Hope's existence in the world. My quiet space.
What are your markers of remembrance?

Consider these questions also:

What do you see?
What colors stand out to you? Why?
What does your imagination do with this picture?
What words come to mind?
What favorite quotes from your favorite spiritual literature come to mind?


I invite you to join in conversation with me in the comments below what has come of your contemplative play time today.

Monday, July 9, 2018

My Companion Grief

A Note about this week's posts:
This week marks the 8 year anniversary of the loss of my second pregnancy and with that the death of the child that we named Hope.  All grief is a perpetual journey with reminders of the person showing up at unexpected times, even years later.  Parents often describe the death of a child as a forever grief as they often grieve more accutely at what would have been important milestones and anniversaries of births and deaths.

This week holds two anniversaries for me.  Today marks the day we found out that Hope would not live to birth.  Thursday, July 12th marks the day of Hope's death. (I tell more of our story in posts here.) 8 years may seem like a long time for some, however for me it often still seems like just yesterday.

I realized that my postings this week either fell on or one day before these two anniversary dates.  It felt like a nudge to me to take the time this year to once again mark Hope's existence and my grief journey.  Thank you for taking a moment to come along side as I once again grieve and remember.


My Companion Grief

I stuff my days full of "to do's"
In hope that these next days and weeks
will speed by.
In hope that I won't have the time to
notice my heart remembering
it's being ripped in half eight years ago.

But grief, my friend,
you do not work that way.
You are strong.
You push up past all
the busy barriers I try to put up.

To you it does not matter
if it has been
one day
one year
one decade.

You return to visit time and again.
A reminder that life is not a given.
That life requires periods of letting go
and figuring out how to move forward
when it feels like your world has stopped.

Grief, we have journeyed
hand in hand
for eight years now.
You have taught me much:
~that I am stronger than I realize
~that you are a universal connecting point
~that my ability to grieve is in direct relation
to my capacity to love.

Today you tap my shoulder once again
reminding me of your presence
reminding me of another year of anniversaries
and the need to remember deeply TODAY.

I take your hand and let you
gently guide me through this day
and the days to come this week,
knowing that tomorrow will come.

With the hope of sunrise
comes the hope of once more
surviving the deep feelings
and finding my battered heart
just a bit more healed.

Monday, April 23, 2018

Hope's Living Labyrinth

You were birthed out of a need
To mark the existence of my Hope.

I lovingly designed you with intention.
Choosing the design
for my spiritual connecting points.
Choosing the plants for their beauty.
Creating, for me, the perfect space
of remembrance and healing.

Then plants died,
I replanted.
They died again.
I accepted the need to try
different plants.
It's was almost as if -
you were growing
creating your own identity.
Just like my little one would have grown.

I went out to tend you the other day.
To start waking you up from your winter slumber.
Again - plants had died.
What will replace them this time?
I don't know.

You are growing,
transforming again.
Just like my Hope would be.

My Hope would be 8 now.
Discovering new likes,
Embracing the personality forming.
Transitioning from a little child to an older child.
So perhaps it should not surprise me that
you also are changing again.

I think that this time I will not rush
to "fix" the empty spaces where plants were.
Instead I will listen.
Listen to your guidance.
I will let you tell me what your next expression
of self is to be.
Just like I would have done for my Hope.

You were birthed to honor the
living, loved child that never
made it to live in this world.
It is no wonder you have taken on
the living and growing that
was never to be for my little one.

You took on my Hope
that I gave into your care
when I created you in Hope's memory.
It is time for me to quit
making you into my image
and honor your path
and your gifts,
To let you be what it is
that you choose.

Wednesday, November 30, 2016

Advent Peace - Advent Guilt


Advent has arrived and with it our tree is up and the spiritual journey is underway with both family and mother/daughter devotions around the advent wreath. Overall, it is a fairly normal (if there is such a thing) Advent. On further reflection, if I’m honest, I’ve found myself inhabiting a weird place of grief.  No, grief and guilt. It is a truth that for women and families that experience fertility issues and/or pregnancy loss and infant death that Advent and the hopeful waiting towards the birth of Christ can be painful and a struggle to get through. After six years on this journey I find myself finally reflecting deeply and intentionally on my own relationship with Advent as a bereaved mother. And I have come to the conclusion that it is complicated.
The part of me that is deeply connected to contemplative spirituality and spiritual rituals looks forward every year to putting up the Advent wreath and choosing the devotional material for our family worship around it. This year my daughter and I are slowly coloring our way through an Advent poster every morning before school and work. I love these moments, I love planning for them. I love guiding my daughter through Advent to Christmas with a strong spiritual focus on the reason we celebrate Advent. I don’t feel the ache in my heart of what should have been with our second child until we light the candle of Hope. Hope, our child’s name, and am stopped in my journey with emotion. These are the emotions of the heartbreak of grief and the guilt that Advent does not remind me in a deeply emotional way of my Baby Hope. Then I remember that I have chosen to honor my baby Hope by living fully into my life, and for me that also means choosing to find joy and peace in the waiting for Baby Jesus to arrive. But sometimes it gets complicated because when the feelings sneak up, even after six years, I think I should have a handle on it. I have to remind myself there is no timeline with this forever grief, and it is ok to not have a handle on it some days, even six years later.
Guilt crept up again as we put up the tree. CJ has her own collection of ornaments, and earlier in the year she was commenting on how Hope did not even have one ornament of her own. CJ was very intentional about remembering to put up the purple snowflake on the tree that she received at the bereavement walk we did in October (you can read that blog here). It was important to her that her never-born sibling have Hope’s very own ornament on the tree, just like CJ has her own ornaments. Because I knew how important that was to her, I had planned on us putting Hope’s snowflake on the tree together, taking a moment to remember. In the hustle and bustle of decorating, CJ put the ornament on herself  - no ritual or special moment of remembering done together. I felt guilty; something that important should be guided by me. But then again maybe not.  Maybe that needed to be CJ’s thing as Hope’s sister, done in her own way. Then I felt a bit sad and left out. Like I said, sometimes it’s complicated.
And amidst all the Advent and Christmas preparation, parenting and life continue. Adding in piano lessons for CJ making it a total of 3 activities she is in. It was never to be more than two, but she is an extrovert and needs the interaction. As I sit down with my calendar trying to balance the schedule for school, work, her activities, my self-care, church, down-time as a family, my thoughts immediately go to wondering "how would I have ever done this with two kids? ". And a guilty feeling of contentment being mother to my one living daughter comes over me. When these moments hit, the guilt looms large, like I have tossed my dear Baby Hope aside. That is not the case at all. I would have embraced the crazy chaos that comes with more than one child, oh so willingly, if that had been our future. But I have also chosen to honor my second child by embracing the life and family that has been given to me, and that my husband, daughter and I make together. Embracing means living into the fullness of the type of mother I am able to be now, in the life I have now.

When the guilt looms large, I try to think of my baby Hope moving in just a bit closer, reminding me it is ok to experience Joy, Love, Peace, and Hope. It is ok to be happy and content in the place I am. So this Advent season I am choosing to live into the PEACE, HOPE, JOY AND LOVE of the Advent candles. But I also know it will always be just a bit more complicated for me living in this place of remembering, honoring and living life. And that is ok too.

Thursday, November 3, 2016

Lengthening the Apron Strings



A while back I was chatting with some other moms at work and we got to discussing teaching our kids responsibility and independence.  It was a timely conversation because just a few short days before my husband and I were talking about this and how and when would be appropriate to encourage further independence for our daughter.  I was very uncomfortable to the point of being somewhat resistant to the conversation. But sensing how deeply he felt about the topic at hand, I tried to engage with an open heart and mind our conversation.

It was as I was talking with this group of moms that I discovered the source of my resistance.  As is often the case when chatting about parenting, I said what I often do “with C growing up as an only child…..” That was when the light went on.  C is my only living child, and as such I recognize that I tend to be much more protective of her. What I had not realized was how deeply rooted and emotional that protection went. The idea of soon having her make her own breakfast or take responsibility for getting herself up with an alarm clock in the morning shakes my soul.  It is a removal of just a few more things that I have gotten used to doing for “my baby.” It is one more reminder that my baby is growing up.

In the shadows of this it is also a reminder of the fact that there is only one child I got to do these things for. There are no more little ones after her for me to continue doing these tasks. But there was supposed to be another one and grief becomes two-fold once more.  This is what makes it so hard for me to keep “lengthening the apron strings” and giving more independence to my child.  With each new set of tasks of independence and responsibility come with it another round of grief over “my baby” growing up. It is one more thing that this very protective momma has to let go of. It is yet a reminder that this is the last time I may get to do this at all, because the one that was to come next, never got to live.

And so it is in this tension of knowing I need to let the “apron strings” get a bit longer, let my precious not so little one gain more independence and the simple fact that my heart does not want to to it.  I want to keep her close, where I can protect her because the thought of anything happening to her, my only living child, is just more than my heart can handle.

It is in this space of tension that I am grateful for my husband who pushes me and is her champion for more independence and forces me to face myself and let go a bit more. It is in this space that God and I do a lot of talking and I tug on God’s apron strings just bit harder asking to be gathered in closer. 


It is in the nearness of my image of a parent God, who also had to let the child Jesus go into our world, that I find my comfort and strength to do what I know is right in giving more independence and responsibility. It is in the gathering into God’s presence that I find the courage to face again my two-fold grief and rage about how unfair it is that I have to do this. After my tears are spent and the snuffling breaths turn into deeper more sustaining breaths, I know what I must do and I venture back into my world of living and grieving that are all wrapped up into one. I also know that this will not be the last time that I find myself at this crossroad and that each time I will have the strength of faith to give my precious one wings to fly.

Thursday, October 6, 2016

Benches, Gardens, and a Ritual of Healing



October is National Perinatal Loss and Infant Death awareness month and as this is a topic close to my heart I like to spend my first blog for the month of October reflecting in this area. This is usually one of the blogs where the words come easy. This year it is different, I am not sure why but the words are not coming easy.

If you have been reading here a while you know I am a chaplain and have as one of my units the Maternity areas. I also serve on our hospital Maternity Bereavement Team. Each year on the first weekend in October we host a memorial walk for families who have experienced perinatal loss and infant death. This year was special because we also dedicated a garden space that is dedicated to remembering our little ones who have gone from our arms, but not from our hearts. Our team has been working for years to see this garden become a reality.

This past Sunday, I spent the early part of the afternoon speaking words of dedication, walking, remembering, and honoring our Hope alongside many other little ones. I was honored to remember the short life of a special little girl, who had a very special connection to the hospital I work at. It was her death and the gift of a bench by her family and friends that provided the momentum for the garden itself.

I personally felt deeply the gift of this bench. In preparing for the dedication, the family made it clear that it was their hope that the bench would be a place of comfort for all who walk this journey of loss and death of little ones. Their gracious expansion of the meaning of the bench beyond themselves is a blessed gift to me as the tangible places and things that mark our Hope’s presence in this world are few and far between.

My loss did not happen at a hospital, so the fact that the bereavement team has been intentional about the garden being for all who experience perinatal loss and infant death, no matter if it was at our hospital or not, is another gift. It is another small way of others saying my little one is special and had an important place in this world and is worth remembering. I know this as Hope’s mom, but to have other people and an institution say this in such a public way is a gift of healing that words fall short of conveying.

It has been a little over 6 years now since Hope died and Sunday was the first time since the small private service in our home that my family had gathered with intentionality remembering Hope’s presence in our family. This was the first time we had been as a family to a public memorial walk event. There were tears as we stood and listened to our Hope’s name read aloud by one of the nurses I work with and we walked to place our roses in front of the angel statue. My husband, daughter and I stood in a close hug with my parents not far behind us as we listened to all the other little ones name be read and honored. And for a small moment in time we were a part of people who shared a similar grief.

We have had moments of healing all along this journey and each has been Holy, but there was something very special and Holy and sacred sharing this time with my family that seemed to solidify my own healing as a bereaved mother.

My daughter stood at my side as I said prayers and spoke words of dedication. She held my hand as the two of us led the group on the walk. She shared with me as we walked that she finally feels ok in her own grief journey. She has really struggled to grieve her role as big sister and I have journeyed very intimately with her helping her young, tender heart deal with this very big grief. The healing power of ritual was very evident in her response to the afternoon. It was a very unique afternoon of my ministry as a chaplain and my role as a mother coming together, quite literally side by side. But again there was The Holy in this meeting up that I have not felt this strongly before and will cherish for many years to come.


As I come to the end of the struggle to put these words to writing, I am realizing what the power of the day was for me. I finally experienced a public ritual of remembering my little one. The day may not have been all about our baby Hope, and we were sharing the ritual with many others. But then, perhaps that was the power of the day. We shared our common grief in ritual and that is healing.

Wednesday, June 15, 2016

Loss of Legacy


A NOTE ABOUT TODAYS POST: If you have spent any time here, you know that the issue of perinatal grief is one near and dear to my heart. I have spent time reminding people that days like Mother’s Day and Father’s Day can be painful reminders of children no longer living. However the topic has always been addressed from my perspective as a mother. As we approach Father’s Day and a Father’s Day that this year will be overly filled with grief I have asked my husband, Collin Freeman to share his perspective as a bereaved father. I am deeply appreciative of these reflections of his heart.

Grief over the loss of a child is at best a very hard subject to discuss. When it is your own child, the difficulty is immensely magnified. My wife is an ordained Christian clergywoman and a hospital chaplain. She has been taught to deal with death, and yet all of that teaching and experience goes out the window when it is you who suffers the loss. I sense there is an understanding within the community of caring for grieving parents that says, “Men handle these types of losses differently than women”. I cannot speak to that line of thought. I am at best an amateur in perinatal grieving. What I can do is share with you what the loss of our unborn child was for me from my personal experience, and perhaps give some insight as to what husbands/fathers think and feel during that horrific time of discovering the birth of your child will not happen.

I remember not long after having experienced this tragedy in our own lives, my wife and I attended a small Christian music concert in which the musical artist and his wife also had a similar experience. He said, “Nothing in life ever prepares you for that”, and he was so right. Even when a baby dies in utero, the loss and heartbreak is shocking. You least expect anything to go wrong during the process of life being created. To have that blooming life end suddenly during that development time hit me like a brick wall at 90 mph. The “why” and “how” questions are inescapable when you first hear the news, and I imagine can often stay with a parent for years. In our case, we searched out those questions early but found no answers. There was no health, exposure, or genetic component that could be found that caused our little one’s body to become so deformed and incompatible with anything resembling healthy development. Had we found an answer, however, it would not have changed the result. Our family would not be the same from that moment on, because one of us would never make it into this world. There are families who find some solace in having another child (or more) later in life. For us, that was not to be the case. We tried to conceive again, but to no avail. So we became and remain a family of three. It continues to amaze me how long it took for us to conceive our first child, a girl, and how perfect she has been, from the womb to now. A parent could not ask for a better child than our daughter. And then, the second time we tried to conceive, it occurred within a couple months instead of a couple years, and yet that potential future child had such incredible physical development complications unsustainable for life in utero.

So what can I say to all of this?  How did I, a man, deal with it all?  Not entirely well, as one could imagine. The news came abruptly, and we did not have a large amount of time to process it all and make decisions. I felt I needed to be supportive of my wife who was understandably distraught beyond belief. We stayed close to each other, hugged each other, and did what I imagine God intended when the concept of husband and wife was first introduced into this world: we supported each other. The discipline of proximity and space can be very helpful. Just knowing you are not alone in these situations is a comfort, even if it is a small one. The shock of what we were hearing removed some of the sorrow for me, as the whole concept of not even having another healthy child in our lives was so inconceivable to me at that point. We had made plans. Men often do, and my wife is also a big planner. We were going to be a family of four. Adding another life to your family is a big, life-changing plan. Now to have the plan totally torn up and thrown away was staggering, to say the least. Because of that initial shock, a good portion of my grief spilled over in later days as it wore off. I have found in my grieving that delayed grief is more the norm, at least for me. It has typically been days or weeks later that a huge swelling of sorrow bubbles up and spills over to the point of breaking down. Perhaps this is a built in response for men to have such a large expenditure of emotion well after the fact rather than when it first occurs. So I say, watch your fathers in the days and weeks after the tragic event – they may seem to be doing fairly well initially, but the tremendous outpouring of sadness is going to come.

We also had the unpleasant task of telling our daughter that she would not be getting that new baby brother or baby sister anytime soon. She was not yet 3 years old at the time, but we explained it fairly simply and she understood as only 2-year olds can. I say “we”, but actually my wife was the one who did most of the talking. It was a necessary, unpleasant task, but we got through it. Is finding the right words to say to another loved one easier for a woman?  I am not sure, but when that other person is a chaplain, it is probably at least a shade easier for her/him. I do recommend getting advice from a counselor or chaplain in how to approach this difficult subject with the children in the family, and perhaps even have them physically present in the background as moral support for the difficult task of trying to explain what has happened.

One thing I can say as a man that might have more of an impact on the death of a child at any age is the gender of that child. For some men, the loss of “Daddy’s little girl” could be earth shattering. For other men, the loss of a son who would carry on the family name might be very hard to come to terms with. For me, the latter was the case. As I mentioned before, we have a lovely, smart, perfect daughter. I have a sister; she is married with two lovely young women. For me, it could very well mean the end of the family line of my name when I die. It is neither a big nor a small thing to consider, but even in these modern days, men might feel a certain responsibility to make sure their family name is proudly carried on into future generations. When that no longer becomes a likely reality, another kind of loss can also be felt on the part of the husband/father. We do not know what the gender of our unborn child would have been. If we had found out, and it had been a girl (as our daughter would have preferred), I would have been as equally devastated.

It is my hope that these reflections have given you some thought as to what men (or at least one man’s) experience could be when faced with the loss of a born or unborn child. It is something no parent ever wants to face. For me, the best solace I could find was in the support of friends and loved ones, be they spouse, relatives, pastors, friends, co-workers, or even someone not well known to you. In fact, one of the best pieces of comfort that came to me during that time was in a Facebook post from a long-time friend of mine who I seldom see any more but just happens to be a self-proclaimed agnostic. God did not create just you. God created us. There is no “I” in “Team”, and there is no “you” in suffering the loss of a loved one.

Collin Freeman is a health care professional and husband to Joy Freeman, blogger here at Chaplainhood.  He is father to one 8 year old daughter and a child, Hope, up in heaven.

Friday, May 6, 2016

Mother's Day - Not Aways so Easy

Mother’s Day is just a short few days away.  While growing up it meant sending cards to the various important women in my life, making sure I did something special for mom and I never thinking much more about it. And it went on that way until the two years my husband and I were trying to get pregnant with our oldest. Sitting in church with all the mothers with their corsages and mentions of how mothers are important was painful to my soul that wanted so badly to be a mother. A deeper awareness of how painful this day can be came when our second child Hope died and I became even more aware of how Mother’s Day can be sweet with loving attention from one child while also deeply sad with memories of the child who died.

Living with this tension has made me very aware of how there are so many who struggle with this day. As the TV is filled with commercials reminding us to get mom the perfect gift, do something special, be sure you make the day all about mom I can’t help but think of moms who arms are empty due to the death of a baby, older child or loss of a pregnancy; women who are struggling with infertility; mother-child relationship that are strained or estranged; those who’s mothers have died and they are left grieving and even fathers who are raising kids all on their own. I think of women who have chosen not have their own children but are very involved as mother figures in other kids lives, I have a couple of women in my own life who have been like mothers that are very special. It’s not always an easy day. And is a day where I try to walk through it with an extra measure of grace, kindness and gentleness.

Every mother’s day since I have been on Facebook I try to post something acknowledging this tension and the mixed feelings that mother’s day brings. I like to remind us that it is ok to not feel all warm and fuzzy and to have the need just to survive the day. Because after all it is just one day and with tomorrow there is the promise of a new day.

But today I want to give some words of wisdom for accompanying mothers who are grieving children on this day, both children who have died and also the hopes of children that have not come due to infertility. Please do not be afraid of our tears. Please do not be afraid of acknowledging this day with us and that it may make us cry. There is a lot that makes us cry. Most every day has something that makes us remember our little ones. It is part of life for us we learn to live with it and feel blessed by those who choose to journey beside us fearlessly.

If you know our child/children’s names please feel free to speak them to us. It helps us know that others are remembering them too. Let us know that you are thinking of us in some way, help us not feel so alone, because as time goes on this journey can get lonely. And remember each one of us experiences this a bit differently, if you are unsure of how to help us survive the day, ask us and just be there.


So as we move towards Mother’s Day on Sunday I invite you to join me in an extra measure of grace and gentleness, to have a measure of awareness for those who may be hurting or grieving just a bit more, and know that we are in this together.


Thursday, January 28, 2016

The Journey of a Dream

              Not that long ago I was sitting in the comfy rocker/recliner I have in my office doing my morning devotions and I looked over at the file cabinet. My gaze landed on a 5 X 7 piece of paper that I had stuck up there 3 1/2 to 4 years ago. I had forgotten about that piece of paper or what it said, so I went over and looked at it. It was something I had done in our church’s worship service as part of a conversation on visioning. Part of the exercise was to reflect on a journey of renewal. On that piece of paper I had written a personal dream – to finish writing Hope’s and my stories. There were other questions to reflect on, too, such as what changes would I need to make? What might I lose?  What might I gain? The other part of the exercise was to share what we had written with one other person that was there. Speaking my dream made it a bit more real, but at the time I had no idea or real intention of pursuing the idea beyond maybe doing a bit of personal writing in a journal. I had no clue that dream would take root as it did and take me on the journey I have been on for the last two years.
            As I write this I am only a few short days away from February 1st and the release of Still A Mother: Journeys Through Perinatal Bereavement that I co-edited with Tabatha D. Johnson. Never in my wildest dreams would I have ever imagined I would have my name on the front of a book cover. You see, writing was never my strongest talent when I was growing up. I struggled and spent hours working on research and term papers. Never was anything turned in without at least a couple of proof readings by my parents. They proofread papers for me all the way through the end of my seminary career. It truly was a labor of love, for which I am eternally grateful.
            Thinking about this journey and the questions of what might I gain and what might I lose, I know now that I had no clue just how important this dream was to me. I gained so much: a better sense of myself as a bereaved mother, and a courage of truth telling that I had no idea resided within me. I gained a good friend and trusted colleague in Tabatha, and found myself getting to know some other amazing women as they shared their stories with us. When I first wrote on that paper, I thought the only thing I would lose is personal time for myself, and yes, it was a sacrifice of time both on my part and the part of my family. However, I lost something else – I lost the sense of crippling grief and some of the shame that had come with me keeping my story to myself. And it was through this loss that I gained my healing.
            But also, if I am honest with myself, I have to admit there is still a bit of fear and trembling in my soul as I wait for February 1 to arrive. I am used to being vulnerable in smaller settings and one on one. However, writing Hope’s story and having it published in the book required being willing to be vulnerable to potentially the whole world (or at least a large quantity of strangers who pick up the book and read it.)  This is scary. It is scary because I have in essence given my precious little Hope to the world, and with this little one also goes a part of my soul. I wonder how will the world react?  Will it be kind? Will those reading our story be understanding of our choices and struggles? These are all questions I cannot help but wonder about.
            In the midst of the excitement, wonder, amazement and fear I have to remind myself why I started this in the first place. Not for affirmation from the world, although that would be nice. But rather for all the women who have made the journey of having a little one die too soon, so they would know that they do not journey alone. I wrote and edited in the hopes that these words will help to bring this grief back out of the shadows and into a place of understanding and compassion.

            So I invite you to share the journey with us, to read our stories and hear our hearts speak. Remember with us our little ones, and the places they hold in our families and the world. You may do so by ordering a copy at Judson Press and of course at Amazon. If you live in the Kansas City area some copies of the books will soon be available at Unique Finds in Overland Park, Kansas.